Research Fellow & Lecturer in Speech Pathology – La Trobe University
Dr Lucy Knox is a speech pathologist, lecturer and researcher with over fifteen year’s experience working with people with disability across research, practice and policy settings. As a member of the Living with Disability Research Centre at La Trobe University, Lucy’s research focusses on understanding and developing strategies to maximise the social, community and political participation of adults with acquired brain injury (ABI). In particular, her recent research has focussed on learning from the lived experience of adults with ABI, and those who support them, about how to maximise decision-making participation after injury.Dr Suzy Goldsmith is Director of Brain Injury Australia. Her professional practice is in risk management and strategy, with a focus on sustainability and innovation. Suzy was previously a Senior Research Fellow at the University of Melbourne. Her research interests span environment, regional productivity and social inclusion. She has lived experience of brain injury.Mr Nick Rushworth has been the Executive Officer of Brain Injury Australia since 2008. He was also President of the Brain Injury Association of New South Wales between 2004 and 2008. Before joining Brain Injury Australia, Nick worked for the Northern Territory Government setting up their new Office of Disability. Formerly a producer with the Nine Television Network’s “Sunday” program and ABC Radio National, Nick’s journalism has won a number of awards, including a Silver World Medal at the 2003 New York Festival, a National Press Club and TV Week Logie Award. Nick has lived experience of brain injury.
“There was just always a kind of an underlying feeling that they… didn’t believe me”: Understanding the lived experiences of adults with mild TBI who experience a prolonged recovery.
Background and Aims: Up to 15% of people who sustain a mild TBI (mTBI) may experience a prolonged recovery. However, there remains a dearth of literature exploring the lived experience. The aim of this project was to develop an understanding of the needs and experiences of individuals who sustain mTBI and experience a prolonged recovery. Methods: Participants included 17 adults who had sustained an mTBI and reported prolonged recovery. Each participated in a single semi-structured and completed a short background survey. Interview data was analysed using thematic analysis, as described by Braun and Clarke (2006). Findings: The data captured through the interview process coalesced around eight key themes which captured the lived experiences of the participants in this study. These themes represented participants’ experiences of early treatment, factors that supported and hindered their recovery, through to the long-term consequences experienced by individuals as a result of their injury. Implications: Adult with mTBI describe the importance of being provided with early and accurate information about their injury, having access to specialist services with current knowledge of brain injury rehabilitation, and feeling heard and supported by their practitioners. This study highlights importance of embedding lived experience in service development and design.